Three Truths 7 Months after Infant Loss

After my blogging series on grief leading up to the March for Babies, I wondered if I should keep blogging about my grief. Part of me hesitated because I needed some time to process my emotions in private, while another part of me didn’t want to continue making people uncomfortable. My decision to continue writing about my grief journey was made when I realized that this is my blog—I run this—therefore, I can write about whatever I want to write about 😉

Since the last time I wrote about grieving the loss of my newborn son, Izzy, I’ve realized a few huge truths that have been hard for me to accept, yet necessary to accept in order to move forward.

1) I have experienced a traumatic event and neither I, nor my life, will ever be the same.

A few months after losing Izzy, I was fortunate enough to start speaking with a clinical social worker about my grief. She’s extremely educated, keeps her short, relaxed hair laid, and shares my love for LUSH cosmetics and natural beauty products. I talked to her about my struggles with explaining my grief to friends and family members and finding the support I needed. She told me something that set me free, assuring me that I wasn’t going crazy, but simply grieving. She told me, “You have had a traumatic event happen to you.” When she said that, I felt a calm settle inside me, if only for a moment. It was perfectly normal that I felt like I was falling apart—my beautiful, much-wanted firstborn son died and I was in pain. This truth gave me permission to not only grieve, but to seek healing for something that was definitely worthy of grief.

 Dunes2) I will have to learn to live with joy mixed with sadness for the rest of my life.

Grief is sneaky. Even on those days when everything seems to be going well and peace tries to make itself comfortable in my soul, grief tends to show up and yell “Here I am!” For me, it’s especially during those times when I’m expected to be happy—holidays, birthdays, celebrations—when grief decides to show up and knock the wind completely out of me. Even on days that seem like they come straight from a storybook—clear skies, green tree leaves blowing in the breeze, the sun casting rays everywhere and just showing out–I sit and wonder, “How can it be a perfect day when my son is not here? How can it be this tranquil outside when there’s a storm brewing inside of me?” I’ve learned that even when there are things I am genuinely joyful and excited about going on around me, there’s still a longing and sadness inside of me. I can sit in awe of how much my 3-year-old daughter has grown and how proud I am of her, but still feel a weight in my chest and a longing for my son because I love him just as much as I love the daughter that is physically here with me.

 3) This is an incredibly hard and lonely road.

Any kind of grief is isolating; it’s something personal and completely unique to each individual. However, when people question the validity of your grief, it is even more isolating. Even in the year 2016, babies lost to miscarriage, stillbirth, and infant loss are not fully believed to be valid losses worthy of grief. Many times during the last few months, the silence I felt from those around me has been deafening. There were times when I wondered if I was to blame or if I was imagine that my son actually died because of the behavior of people around me. I’ve been ignored by family members that I was once close to and told the reason was they wanted to give me space to “get myself together.” I have listened to people try to minimize my son’s life and my grief by telling me that it “is normal and happens.” I’ve felt judged for my sadness and struggle to fit in despite the fact that inwardly I was fighting for my life every day because of the emotional pain I felt. I’ve felt like people expected me to move on before I even really started the grieving process. This is hard and it hurts like hell.

Even though I hurt, I am constantly encouraged by the women I see and connect with online who are celebrating their angel babies and doing phenomenal things in their babies’ honor. They are taking something that could’ve destroyed them and are becoming more compassionate people from it. These ladies along with my belief that all of this pain will somehow result in good keep me fighting to live life for Izzy every day. August 25, 2016 will be mark seven months since I met and lost my Izzy and I’m still here, fighting to live just as he fought to come here to say “hello” to me.

Walk Day: March for Babies 2016 Recap

Walk Pic with blog logo

Izzy’s big sis sporting her fly “Proof that miracles happen” cape!

 

Sunday, April 24, 2016—the day of the March of Dimes March for Babies—was a perfect day. The sun was shining bright and the temperature was probably somewhere in the 60s-70s in the Chi—warm, but breezy. As we walked on the lakefront downtown, the sun sparkled like diamonds on Lake Michigan and the sail boats gently swayed in the wind. We walked in solidarity with countless other families who have either experienced the anxiety of taking care of a premature infant or families, like us, who were there celebrating the life of an angel baby that is no longer on earth. My husband and I felt part of a larger community of parents who have been through the fire and have come out not only alive, but refined. We were grateful to know that we weren’t alone.

Everything was perfect, not solely because the weather was nice or because we had a great group of close family and friends supporting us or even because we were able to do something to help others in honor of our son, Izzy. (Our team, Fight4Israel, raised $1,943 for babies!) It was perfect because we chose to focus on the things that were going well instead of the things that weren’t. We chose to be grateful for the people who came out to walk with us instead of the people who didn’t. It was perfect because it was symbolic of us choosing life instead of choosing to spiritually die because our hearts were broken from losing Izzy.

 

Walk Pic with blog logo4

The majority of the Fight4Israel team. Thank God for them!

 

It was just one day. As long as we’re on this side of heaven without Izzy, we know that there will be both sunny, breezy days when we’re walking in hope and cloudy, dismal days when we have to look hard for meaning out of everything that has happened. Regardless, we will look back on Sunday, April 24, 2016 with joy and gratitude because it was at least one day of victory over grief!

Walk Pic with blog logo2

Cousins! One walked for her little bro, a preemie in heaven. The other walked because she was a preemie and is thriving!

 

 

 

Izzy Taught Me

It’s 2 days until my husband and I will participate in the March of Dimes March for Babies in honor of the life and death of our son Izzy who passed away on January 25, 2016 due to bilateral renal agenesis (BRA), a fatal birth defect when a baby lacks kidneys. I’m pushing myself to write and post on the blog each day until the walk—some days a little and maybe some days a lot—in hopes of shedding light on issues like miscarriage, stillbirth, and infant loss so that other women who go through these types of things know that they’re not alone. Please share this post generously to spread awareness!

Birth Defects Ribbon

Izzy taught me to…

Be grateful.

Accept people as they are.

Live for a cause bigger than myself.

Invest in my personal growth.

Be open.

Be honest.

Value relationships.

Treasure time.

Be authentic.

Forgive easily.

Treat people better than they treat me.

Focus on the positive.

Live in the present.

Work towards building legacy.

Learn always.

Take responsibility for my health and my life.

Build up myself and others.

Let it go.

Create a vision for my life without limits.

Seek growth, not perfection.

 

My family and I would love for you to donate to our March for Babies campaign! Any amount no matter how small may help other families of premature infants. Click here and know that we’re so thankful for you!

Destiny

It’s 4 days until my husband and I will participate in the March of Dimes March for Babies in honor of the life and death of our son Izzy who passed away on January 25, 2016 due to bilateral renal agenesis, a fatal birth defect when a baby lacks kidneys. I’m pushing myself to write and post on the blog each day until the walk—some days a little and maybe some days a lot—in hopes of shedding light on issues like miscarriage, stillbirth, and infant loss so that other women who go through these types of things know that they’re not alone. Please share this post generously to spread awareness!

Destiny paragraph jakes

Currently reading, Destiny: Step into Your Purpose by T.D. Jakes to try to make sense out of my past, my present, and my hope for the future. I’ve never been into T. D. Jakes’ teachings and sermons as much as I have been during my current grief journey. Grateful for The Bishop.

My family and I would love for you to donate to our March for Babies campaign! Any amount no matter how small may help other families of premature infants. Click here and know that we’re so thankful for you!

Feelings and Actions

It’s 5 days until my husband and I will participate in the March of Dimes March for Babies in honor of the life and death of our son Izzy who passed away on January 25, 2016 due to bilateral renal agenesis, a fatal birth defect when a baby lacks kidneys. I’m pushing myself to write and post on the blog each day until the walk—some days a little and maybe some days a lot—in hopes of shedding light on issues like miscarriage, stillbirth, and infant loss so that other women who go through these types of things know that they’re not alone. Please share this post generously to spread awareness!

How you act quote td jakes

Feelings are important and must be acknowledged, but we all have those times when we know our feelings are contrary to what our head or our spirit tells us to do. Pretty much every time I write a post that’s deeply personal to me there’s a moment of hesitation before clicking “publish” or “share.” My feelings often tell me to keep my story to myself. It’s too precious to me. It’s too sacred to share with others that may only see it as entertainment or read it as something to gossip and snicker about. Yet, my spirit tells me that one of the reasons I went through the things that I’ve went through is to share my experience and what I’ve learned. Plus, there’s a boldness I feel now that I didn’t have before. Since I’ve been completely broken in spirit, there’s no where to go but up. People’s opinions won’t make or break me now because they won’t give me back what I’ve lost. Opinions are irrelevant and I definitely can’t cash them in at the bank.

It’s common for many women who’ve experienced miscarriage, stillbirth, or infant loss to feel like they are to blame in some way, like they’re inadequate, or like they have failed. There is nothing wrong with you, but everything right with you. Your heart has been broken, but it’s still beating and it’s stronger than its ever been. My encouragement to you is to share your story if you feel led to do so by some force that you can’t name. You may never feel like you are ready, but more than likely you will find greater peace if you release any shame you feel about your situation. Bad things happen to everyone and there is nothing you’ve done to deserve losing your baby. Choose to act on faith rather than not acting because of how you feel because you just might help someone else mend their heart as well.

My family and I would love for you to donate to our March for Babies campaign! Any amount no matter how small may help other families of premature infants. Click here and know that we’re so thankful for you!

No Sleeep

It’s 6 days until my husband and I will participate in the March of Dimes March for Babies in honor of the life and death of our son Izzy who passed away on January 25, 2016 due to bilateral renal agenesis, a fatal birth defect when a baby lacks kidneys. I’m pushing myself to write and post on the blog each day until the walk—some days a little and maybe some days a lot—in hopes of shedding light on issues like miscarriage, stillbirth, and infant loss so that other women who go through these types of things know that they’re not alone. Please share this post generously to spread awareness!

Unfortunately, I’m not about to write about the good kind of “No Sleeep” that Janet Jackson sings about in her song. My “No Sleeep” started the night that my newborn son died. The night that Izzy passed, I cried myself to sleep and slept for about 3 or 4 hours before I woke up again to cry and stare out of my hospital window. I could see Lake Michigan and I remember thinking how strange it was that the sun was coming up and the world was still going after everything that just happened. It’s been hard to sleep ever since that night.

Once I came home from the hospital, I was only able to sleep for a few hours at a time before waking up and staring into the darkness of my bedroom. Sometimes I could let out a good cry and go back to sleep, but other times I would just lay in bed with my eyes closed and my mind racing. A week from today will be 3 months since he was born and passed away and I still find myself feeling like a zombie most days because I’m not getting nearly as much sleep as I need to feel my best.

1935415_289262140528_2733592_n

Me, sleep-studying in college during my senior year

There are some people, like my husband for example, who are still able to thrive with very little sleep. He’s so used to being tired that for him it’s almost a nonissue. But I on the other hand have always been a person that needed at least 7-8 hours in order to have enough energy to even say “Good Morning” to someone without having an attitude. I’ve always not only needed sleep to feel ready to handle the day, but I’ve always just loved sleep. It was one of my favorite things to do. It was also a refuge for me when I was going through hard or stressful situations. I took so many naps in college after my Dad died from cancer that I wish napping was a major because I would’ve graduated summa cum laude. But this time, I can’t sleep away my grief. There’s this anxious feeling in the pit of my stomach that keeps me up even when I’m on the brink of exhaustion.

 

Grief itself is exhausting. Of course, grief affects every person differently. However, for me and for many other people from what I’ve read/heard, grief can physically wear you out. The pain of loss can feel like a weight that you carry around 24/7 without any relief and it just makes you tired—weary really. One of the toughest things about this is it’s when I’m the most tired that the sadness and pain of grief seems the most overwhelming. It’s hard to stand under the weight of it all mentally, when I’m physically void of energy.

Through it all, I’m trusting in God that I will get through this and for those of you that may be having your own physical or mental struggles from grief, I’m praying the same for you.

My family and I would love for you to donate to our March for Babies campaign! Any amount no matter how small may help other families of premature infants. Click here and know that we’re so thankful for you!

Love

It’s 12 days until my husband and I will participate in the March of Dimes March for Babies in honor of the life and death of our son Izzy who passed away on January 25, 2016 due to bilateral renal agenesis, a fatal birth defect when a baby lacks kidneys. I’m pushing myself to write and post on the blog each day until the walk—some days a little and maybe some days a lot—in hopes of shedding light on issues like miscarriage, stillbirth, and infant loss so that other women who go through these types of things know that they’re not alone. Please share this post generously to spread awareness!

This past weekend was rough emotionally. The gray skies and cold rain here in Chicago mimicked how I felt inside. I questioned how Izzy could be taken from me so soon when I felt such an overwhelming love for him. Every parent of an angel wonders how it’s possible to have lost a child that you would gladly trade your own life for when there are so many parents in the world that have child after child that they don’t want. It’s a question that I’m sure has been asked since the world began.

After taking time to sit in my pain, I began to think of how my love for Izzy must be shallow in comparison to the love that our Father in heaven has for His children. I love Izzy not because of anything he did or didn’t do, but simply because of who he was—my son. To think that God loves me simply because of who I am and to think that His love is perfect and complete unlike human love is too much for my mind to handle. It’s a love that comforts us in a way that no one else can. It’s a love that strengthens us when we feel like we cannot go on. It’s a love that allows us to hurt so that we can become who we are meant to be. Thank God for that level of love.

My family and I would love for you to donate to our March for Babies campaign! Any amount no matter how small may help other families of premature infants. Click here and know that we’re so thankful for you!

About Suffering

It’s 15 days until my husband and I will participate in the March of Dimes March for Babies in honor of the life and death of our son Izzy who passed away on January 25, 2016 due to bilateral renal agenesis, a fatal birth defect when a baby lacks kidneys. I’m pushing myself to write and post on the blog each day until the walk—some days a little and maybe some days a lot—in hopes of shedding light on issues like miscarriage, stillbirth, and infant loss so that other women who go through these types of things know that they’re not alone. Please share this post generously to spread awareness!

Life is too short to suffer quote

suffer: to become worse because of being badly affected by something

As we’ve all heard many times before, the outcome of our lives is based on our reactions to what happens to us, not what actually happens.

My family and I would love for you to donate to our March for Babies campaign! Any amount no matter how small may help other families of premature infants. Click here and know that we’re so thankful for you!

Guest Post: Pink Letter by Aaron Miles

It’s 17 days until my husband and I will participate in the March of Dimes March for Babies in honor of the life and death of our son Izzy who passed away on January 25, 2016 due to bilateral renal agenesis, a fatal birth defect when a baby lacks kidneys. I’m pushing myself to write and post on the blog each day until the walk—some days a little and maybe some days a lot—in hopes of shedding light on issues like miscarriage, stillbirth, and infant loss so that other women who go through these types of things know that they’re not alone. Please share this post generously to spread awareness!

10896_767675377108_1199103791147266308_n

Tonight I decided to give my wife a break and contribute to her daily post leading up to the March of Dimes walk. Although I struggled to find a topic, I decided to talk about my wife and how she is such an inspiration to me.

I was fortunate enough to meet Carla during my senior in college. I was finishing up my last semester at UIC and when I was invited to attend the UIC fashion after party at Harold Washington Culture Center. My best friend Elijah was meeting a friend at the party and he wanted me to go and play third wheel. To be completely honest, the party was boring and lame (do they still use that word 🙂 ) I stood there looking at my phone and updating my Facebook status. It was not until the end of the party that something got my attention. Elijah hooked up with the friend he came to meet and she happen to bring her friend, which was Carla. Sitting in this Toyota corolla, was this beautiful fair skinned woman that I had to meet. I approached the driver side of the window and introduce myself in my deep voice. “Hi, my name is Aaron”. She cited her name was Carla. We fell immediately fell into a lively conversation about each other.  What really struck me about the conversation was that she was extremely intelligent and engaging. She was well-versed in politics, faith, music, and understanding her dreams. I realize then that I made a right choice in going to that party that night. We decided to exchange numbers and coordinate a date.

As I finished my last semester, we connected time to time over text message and email. It wasn’t until early summer after graduation that I decided to ask her out on a date. I picked her up on a Saturday afternoon and went out on the town. What really struck me was how vested she was in me and liking me for who I was. I coined that summer “Black Summer nights” In our honor of our favorite album that year by Maxwell. It was summer, in which I really felt alive and at peace with someone that really cared for me. I was finally with someone who wanted to love me for who I was. With the financial crisis 2008, finding a job was very difficult. Majority of the summer, I struggled and battled to find work. I remember Carla was on a study abroad trip in London, England and she sent me a letter on Facebook encouraging me and that better days will be ahead. I remember her texting me before countless job interviews and giving me a dose of hope. She always has and will continue to support me in my endeavors.

After a couple of years, we decided to get married. As I look back on this day, I realize that I found the greatest thing that ever happen to me. Carla means so much to me in my life. She is a wonderful wife and goes above and beyond the call for duty. She does such a fantastic job caring for our 2 year old daughter as well as her 29 year old husband 🙂 The most powerful vowel is for better and for worse. Carla and I has shared our moments of triumphs and tragedy. The loss of Israel, was a tragedy that is very difficult to overcome. Through it all, we learn to continue to get closer to God and each other. It is our divine order to become stronger, wiser, and better in God. Overall, I appreciate the journey with Carla and look forward to continue to the travel the roads less traveled with the love of my life.

My family and I would love for you to donate to our March for Babies campaign! Any amount no matter how small may help other families of premature infants. Click here and know that we’re so thankful for you!

About Falling Apart

It’s 18 days until my husband and I will participate in the March of Dimes March for Babies in honor of the life and death of our son Izzy who passed away on January 25, 2016 due to bilateral renal agenesis, a fatal birth defect when a baby lacks kidneys. I’m pushing myself to write and post on the blog each day until the walk—some days a little and maybe some days a lot—in hopes of shedding light on issues like miscarriage, stillbirth, and infant loss so that other women who go through these types of things know that they’re not alone. Please share this post generously to spread awareness!

There’s no avoiding it.

It may be after being on a motivational high all week. You may feel like you can conquer the world. You may feel like a true badass. You will refuse to be a tragedy. For 13 weeks you managed to carry a baby in your womb that you knew would die in your arms, if not before. You will pronounce yourself victorious because you have been through a type of hell on earth and survived. You will pat yourself on the back for being able to dream again instead of staring in the dark all night. You will declare yourself a survivor because your heart has been broken, but is still beating. You will praise God because you wanted to die, but found several reasons to live. You will tell yourself that you are the real M.V.P.

Then, out of nowhere, you will fall absolutely, ridiculously apart. Snot will run down into your mouth. Your eyes will be bloodshot. You will groan like a sick, old man on his death bed. You will hold your pillow desperate to hold your baby for a minute longer. You will want to crawl as far underneath a rock as humanly possible and completely disappear. You will feel like the trash at the very bottom of an Indiana landfill.

You will fall apart. And it’s ok.

“Rejoice not over me, O my enemy;
    when I fall, I shall rise;
when I sit in darkness,
    the Lord will be a light to me.”

                                 -Micah 7:8 ESV

My family and I would love for you to donate to our March for Babies campaign! Any amount no matter how small may help other families of premature infants. Click here and know that we’re so thankful for you!